Healing begins with knowledge: understanding the emotional impact of IC

JUNE 29, 2016 – Last week I wrote about dejection; today it’s anxiety. This current season of feelings, beginning with extreme aggravation, moving towards dejection and now morphing into anxiety has me quite puzzled. After this past weekend I needed to step back and try to understand just what was going on,

Last week I anticipated a wonderful weekend away with my husband at Hampton Beach, NH. I looked forward to the carnival atmosphere, the gorgeous pristine beaches along Route 1A, the shops and restaurants, and finally, the Happy Together Tour featuring singers and bands of the 1960s (The Turtles, The Cowsills, Mark Lindsay, Billy J. Kramer, Chuck Negron and Gary Puckett).

hamptonbeach

Happy-Together-Cover

The weather was perfection – upper 70s with a refreshing onshore wind. My husband and I have needed this time together after the last hectic few months.

And yet during the trip I was overcome with anxiety. Why?

I have continued to ask God for healing as I pray for friends and family as I sensed I needed those prayers. Just as the book lifted me up and out of myself, prayers for healing uncovered information that related directly to my anxiety. It came from a most unexpected source.

I am researching a biography at the moment and have several years’ worth of notes. They need organizing so today I attended to that.  In the course of the task, I came across an article called “The Psychological Effects of IC.”

ICJust what is IC? Short for Interstital Cystitis, IC is a painful and chronic urinary condition. When paired with Overactive Bladder (which I also have) sufferers experience sudden urges to urinate. If you are not near a bathroom, it can be an excruciating experience both physically and emotionally. It can be quite embarrassing as well. Over time you are conditioned to place the needs of your bladder above all else. I go nowhere now without immediately scouting out bathrooms.

It took years to have this condition diagnosed. Heck, it took years to get a doctor to take my complaints seriously! I took meditation for the Overactive Bladder but it did nothing for the IC. Over time I learned what foods to avoid. The discovery of AZO products (especially Bladder Control Go Less) finally began to bring my IC under control, at least during the daytime. Nighttime is another story (and for another day).

What I have discovered about IC is that it is triggered by stress and anxiety. Going away from home is a sure-fire way to trigger it. If you are not sure where the next bathroom is, you are going to obsess over finding one. Such stress triggers flare ups and before you know it, you’re in a vicious cycle.

What I did not know, however, was that there are long term emotional consequences, something I had begun to suspect after coming home from our weekend. The article I stumbled upon today confirmed that suspicion:

“Although IC is a physiological disease, the effects are emotional. The pain of IC automatically induces an emotional response … The messages from the bladder pain can make a patient feel upset, emotional and depressed as a result.”

In my case, it’s panic. And that’s what I kept experiencing in the lovely yet unfamiliar setting of Hampton Beach, NH. That, and hyper-vigilance:

“IC patients may be seen as emotionally laden victims of a traumatic experience demonstrating hyper-vigilant behavior (the need to be on guard against harm), instead of a person in need of medication to calm the unsettling symptoms of interstitial cystitis.”

This may sound a bit dramatic but the fact it that it is true. This article described my experience to perfection. There was more:

“IC is a daily responsibility … it is not a situational stress that will resolve in time. And, even though most of us build a certain amount of tolerance to the everyday bladder sensitivity (not the painful flare-ups), we still have to place our bladder needs first.”

The world with IC can become very small. And, problems can seem too big to overcome. Sometimes the limitations can make us feel stuck, sometimes with no hope for the future.”

anxietyMy world has definitely shrunk as demonstrated by the tremendous anxiety I experience whenever I have to go away. I am a confirmed homebody—no trip to Europe for me. I chaperone confirmation retreats twice yearly and each weekend is a constant struggle with anxiety-induced obsessive and compulsive tendencies that interfere with my work on the retreat. Finally I have a better understanding of WHY.

I reflected a bit before sharing this blog post. IC and Overactive Bladder are hardly things spoken about freely in polite company. I don’t even know anyone who has it though I know it’s common. So why share this with you?

  • First of all, because someone out there might also be a sufferer and perhaps, this information can be helpful to them.
  • Secondly, to show that healing that comes through God’s grace is more often revealed in steps rather than granted miraculously. But just because a healing unfolds rather than effects an instant cure doesn’t make it any less miraculous in my mind.

I am convinced that because I approached God in prayer for healing (even though I didn’t specify what the healing ought to be) that he gave me the mindfulness to pay attention to this article when I found it.

We’re told that knowledge is half the battle. I believe that. This knowledge has given me great relief.

  • I’m not going crazy.
  • There is a reasonable explanation.
  • Now I know what to ask for in prayer for my healing.

This wave of anxiety will, in fact, pass. And when I feel it return, I know where to go and Who to ask when I need help.

p.s. Those of you suffering from Fibromyalgia and Chronic Fatigue Syndrome – there is something for you in “The Psychological Effects of IC.” Something tells me we have walked down a similar path.

 

 

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